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Friday, July 22, 2011

Just a need to let it out.

This is a new thing for me...sharing lets just see what happens. Let me start by telling who ever reads this a little about myself. I am an almost 44 year old mother, gwamma, wife, sister and friend. I have a wonderful husband and a son and daughter-in-law, also one 2 year old grand baby who lights up my life.
We live on a dairy farm in Oregon that my husband works on ( his brother owns it) it has been in the family for almost 100 years, we have very deep roots. I love animals. I love photography and cooking, i collect old cookbooks and vintage Tupperware, its groovy. The other thing about me is that I have Tarlov cysts, it is a disease of the spine and it sucks. The thing about Tarlov is that there is just not much known about it, some doctors don't even think that it should cause any symptoms, to them I say: "what the hell step into the 21st century and do some research." I am on disability, that was a nightmare to go through. It took almost 4 years to get. There was one line on one report that said tarlov cyst unremarkable should not cause patient symptoms. That line was all SSI needed to deny my claim. For 4 years we lived on about 500.00 a month and I had no insurance, and it was the best thing that ever happened to my husband and I!!! We learned to live on next to nothing and live well, we grow our own veges and eat meat that we named. I have truly become closer to my husband and rock solid in my faith. The hang ups I had about "things" and "stuff" went out the window, at a time in my life that I should have been at my worst I was learning to be at my best.

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